March 23, 2008 - 7:25pm
I have been on pain meds for over three years but in the last 2 months I have been thinking to much about my medications. I just recently had to try out new meds to find a usefull B/T med after my roxi stop working well. Because of my disorder I know that my pain will never go away unless they create a cure for hemophilia. Inside this makes me upset and sad knowing that I am dependent on these medications of no fault to my own, and probably will be for the rest of my life. I told me doc that I dont like taking so many meds and it sometimes makes me sad and he didn think to much of it. I know that some others feel the same but is it "normal" for CPP's? Since my doc sorta blew my statement off would it bee a good idea to see a therapist? I have also thought this route many times but I am scared because I am on enoug meds as it is and dont want to walk in there and them think that I am just looking for another pill to hide my problems :( This tread is mainly to just share my thoughts :)
Thanks, Kenny
March 23, 2008 - 9:26pm
#2
Sorry, youre going thru it
I am about 5 days out and in a lot of pain as well, but you will find if you can make it thru a few days kennyrh, then maybe you can find a med thats not so difficult on your mind. Pain is depressing and so are withdrawals, but if your meds are messing with your head talk to another doc and see if there are other options for you, good luck.. Therapists are good too. That is your call, only you truly know how bad you feel about things...
March 24, 2008 - 6:45am
#3
"I think that your situation
"I think that your situation has more to do with the fact that you were diagnosed with a chronic pain condition and are realizing that you are going to have a lifetime of pain. I think the sadness and depression you are experiencing has less to do with the medication and more to do with the fact that you are depressed by the fact that you will be on medication and will still be in some level of pain for the rest of your life "
I know this, I said it myself when I stated I sad about "TAKING" my meds, not just a particular med :) But you would reccomend I see a therapist about this?
One thing guys I am confused about is that I have seen a therapist before, one meeting and it was more to just to get to know me. In that meeting he told me that I am not yet at peace witt hhe fact that I have hemophilia and will for the rest of my life. Now I though I was or atleast mostly was. I say this because I am comfortable telling loved ones and most complete strangers that I have this condition. But when I told him I miss school when I am forced to be in a wheel chair not because I am in alot of pain but because I dont want to be seen in the chair in dear of being looked a tmessed up or asked the same question over and over again ( I am sure some of you have been in this position) anyways he told me that I am either at peace or I am not at peace, no where in between. Could this not being at peace at my taking medication sadness be one in the same? wehat are your guys and gals opnions? sorry this is long, just had alot on my mind again. If it doesnt make sense I will clear it up if needed :)
Thanks,Kenny
March 24, 2008 - 10:39am
#4
Ya know Kenny
when I was 11, I was diagnosed with dermatomyositis and spent many a day when my family would go out, in a wheelchair,and I got stared at and pointed at and all that mean stuff that people do. I realized though, I didnt care what they thought and I definitely wasnt the only person to ever ride in a wheelchair.. Its the basics that matter, who is around you, who you choose to be around..Id think maybe some type of group or some people who can relate to you would be good...Just my opinion..
March 24, 2008 - 11:34am
#5
Besides my small group of
Besides my small group of normal friends at school I find it very hard to find a group that I can actualy relate too because of the nature of my hemophilia.With my disorder I can get a bleed "swelling" in my joints and must use crutches or a wheelchair for one - 3 days then suddenly come back to schoo walking and able. The questions of "what were you faking?" I get often. Does not help either that after I would come back from being semi crippled and walking again it would only take another 4 days for me to get another bleed and back in the chair at school, back to the "stop faking" and the constent "what happened" comments. I know that I have it pretty bad but there are always some body worse off in the world, always. So I am not sure if I am just being a bit**y :(
March 24, 2008 - 1:25pm
#6
If you have people around you...
Immerse yourself in them, be around them as much as you can tolerate..One of the things Ive found in the last week or so, is OCCUPYING my time, I am alone at the moment and I still have the urges to take a pill because of pain.. I had noticed a former marine on the site who posted it is "stupid" to live in pain, I believe his g/f or wife had said it... But Im finding, it is better to be in "some" pain and fight to get a little bit of normalcy back in my life, than be a slave to my meds, and believe me, I am certainly a slave to my meds...I have now made it 5 days since my last meds and it is a very slow process... Kenny, I would seriously talk to the doctor and not let him leave until youre satisfied that he understands what youre saying as far as meds..Maybe you can find a med thats not narcotic that can work for you.. Im not sure, but given how bad you feel about it, it doesnt sound like the parts of those meds that are supposed to make you feel better from a mood standpoint, are making you feel better from a mood standpoint.. I wish you the best man, its very difficult to cope sometimes, but asking people for help and reaching out are two of the best ways..
March 24, 2008 - 3:33pm
#7
Keep coming here
for the support you want and need. There are so many folks on this site whose threads I've read and they've helped me. I too found myself feeling sad about taking all these meds, but I read someones thread and realized they would not have given them to me for shi--s and giggles. I need them, they help, and I have faith that one day they will be able to cure what ails me...I mean look at what you're using right now to read this. Sixty years ago to mention this kind of communication device would have gotten you stares and laughs. I'm a firm believer in "never say never"
I think that your situation has more to do with the fact that you were diagnosed with a chronic pain condition and are realizing that you are going to have a lifetime of pain. I think the sadness and depression you are experiencing has less to do with the medication and more to do with the fact that you are depressed by the fact that you will be on medication and will still be in some level of pain for the rest of your life so you might want to see a therapist and explain to him/her your situation and possibley consider anti-depressants or therapy. I wish you best of luck in solving your problem and with your condition.