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Joined: Mar 19 2009
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On the right track

Well folks to all of you, finally got off the Nucynta, and done with the pain management doctor.  Again I told you all that I lived in WA now moved to NE, and sure enough I knew it was going to hard to find a great pm doc.  Well anyhoo. I finally after talking to my family physician about my meds and what works and what doesn't work, he has agreed to give me back my perc 10/650 and give me what I need for the whole month.  We have discussed surgery and I have seen a neuro doc, and I am deciding to have surgery in November.  I have been doing alittle research on this double fusion thingee, and well I guess I am really skeptical. I understand that everyone is different in the healing process, and all that. But really there are more cons then pros. Any body here want to help me out with suggestions or maybe suggest another type of surgery that you will be able to get yourself more mobile then the fusion being out for quite awhile?Undecided It is crazy out there about docs and the hard time its taken me since I have been here to get my meds on track. I mean between the new stuff they came out with, and then them making you feel like your a addict already before you even seen.  I was even kind enough to bring ALL my meds to the clinci appt with the pm doc, and its like we cant touch it,  you need to flush whatever you have left with the nurse, and so forth and so forth, its just a crying shame that for some of us we are using it as directed, not selling it,I would be to afraid to do something like that anyways, dont they know that folks look at all that thru your insurance.  I mean I just would never damper my health not being able to have my meds. That is all I am saying.  Shame on all of you that it applies too for some of us that get treated like this because there is so much abuse out there. So much...... 

 

Anyways, please give me your thoughts and opinions okay I really do enjoy everyones input about this surgery.

 

Thanks, Tike 

Y2K
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Joined: Aug 1 2009
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back on the norco

After sweaten it out for a few days, I think I'm good with the Norco's again. Like I said before I'm done with the Oxy's 30 mg ir and the NU are junk!! Look, IDK why my doc would even think about giving me the NU's knowing what I've taken already. They make me feel weird, but no headaches. Stick with what works and try not  to take too much, just my opinion as I'm not a doc.

Joined: Apr 7 2009
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That's great news, Y2K . . . Q here

Well I guess that makes it something like 12 strikes and 1 hit for the Nu team, Y2K. As I wrote earlier, it seems that Nucynta is only effective as a "first tier" analgesic . . . no CP that has tried it to replace opioid dosages above that tier has reported a positive result. I'm glad to hear that your side effects were minimal, Y2K, and also that your PMD didn't give you the run-around on returning to Norcos. Oneir's post on dealing with tolerance was 100% correct in my book . . . I hope that you are able to maintain a pain reduced life with the minimal amount of "help".

After a construction injury over 23 years ago I chose to live with the upper back pain rather than a chancey surgical procedure or the Opioid route. I had to limit myself somewhat in the level of exertion that I was now capable of, no heavy lifting, etc., and also accept the constant pain. I'm glad that I chose that route, I got out of constuction and became a fine art picture framer making a lot more money with even more job satisfaction. I always advise people to stay away from the ever increasing dosages of Opioid pain therapy. However, there is a point that to continue abstinence is foolhardy and can even be life threatening. When I was no longer able to deal with the pain triggered by my cancer therapy, I chose opiates. This site has helped me make the best choices out of a very confusing pharmacological menu. Good luck, Y2K . . . Q

Joined: May 19 2009
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Careful with the Tylenol!!!

Just remember, you're taking 650 mgs of APAP with every one of those Percocets that you swallow and if you take more than 6 of them per day, your going over the allotment for Acetominophen per day which I think is 4,000 mgs.  Just be careful and like I had mentioned in an earlier post on another topic where you bring this up, try asking about the 15 mg Oxycodone tablets.  You can take that and not have to worry about damaging your liver.  Good luck my amigo!!!

Joined: Aug 7 2009
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just stik to the old stuff

just stik to the old stuff

Y2K
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Thanks Q... Arty Lange??

Hey Q, well I'm so young, only 31, and taking these meds. I'm taking 2 Norco's at a time, and I can already tell there's gonna be a tolerance issue again. I'm probably going back with the oxycodone, eventually. I just have to be careful. I'm sorry to hear about the cancer therapy, as I had to go through that with my ex GF. I'm glad you found the artist within!!  Picture framing is much easier on the back than construction. I initially injured my back cutting roof trusses, so I was in construction too. I guess we have to learn to use brain over braun....

 

Is Arty 69 Arty Lange by chance??

Joined: Jun 13 2009
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Fusions

Tike, I had a fusion in 1988, probably not exactly what they propse for you (L4/L5 SI; it was undoubtably the worse decision I ever made.  First of all, it was a gruelling surgery.....tough recuperative process with body cast and such.  I now carry a Titanuim rod within me, one that sets off metal detectors and such.  The thing about hardware, no matter where it is within your spinal column, it is undoubtably going to be stronger than whatever is above or below it - meaning that other levels of your spine are not going to be as strong and will fail.  I am a firm beleiver that back surgery....creates more back surgery.  For me, when they got to the fifth one.....there was a loud "done" in my vocabulary.  Still occassionally a doctor will casually mention a "new procedure".....I tell them they had five chances, talk to someone else.  I don't mean this to change your mind....only to say that a fusion is not be done without caution and lots of forethought.  "They" say it's different now, surgery has changed in the last twenty years...again for me, talk to someone else.

I think it all comes down to pain...what you can stand and what you can't.  Those of us that have back problems are never going to be symptom free.....they cannot "fix" us and we are not going to "get better".  We are not the same as we were before back surgery.  Some of us are just lucky that way.

Good luck in your decision Tike.  I feel for you..........talk to many, many doctors before you let them cut

Joined: Sep 14 2009
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HiI have had a serious a

Hi

I have had a serious a inury at work i had broken my ankle, foot the ligement and nerves. I also crushed my L5 and L4 together and now i need a spinal fusion ( as you can guess the pain get unbearable at times). I had been on perc 5's than i as bumped up to per10"s. My next visit i asked if he could change it for me due to bad pains i was reciening from all the tylenol from the percs. he was going to give me oxycodone with no tylenol but at the last secnd he wants me to try "Nucnty". So i agreed.

It seemed to be doing so so in the beginning but now overtime i take it i get headaches, dizziness, unpset stomach here and there and now it  just does not seem to get the pain to go away i felt i was better off with the perc but they cause uncomfortable pains in my sides. I just feel real uneasy when i am on it. the nucynta

 

What do you guys recommend me trying for next?I am going to go back into the office tomorrow to talk to him.

 

Thank You

Joined: Sep 18 2009
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This new drug

After all of the research I have done, how in the world could this be scheduled as a class II? I hav found 1 refrence to strong uphoric feeling on a website, so where is the potential for abuse? I just was scripted NuCynta today, and have not found a pharmacy 1 that carries it. I have to have it ordered in. I'm in serios doubt of this drugs effectiveness after reading this post, and many other refrences. I've been on every possible Opiate of different strength and know their pharmacology fairly well. I was in an auto accident and am currently considering a surgery option but I'm hesitant to "go under the knife". I hope this new drug isn't useless. I'm evaluating this Nucynta to possibly replace the 15mg Morphine 3x day in conjunction with Fentanyl 100mcg patch every 48 hours.

I'll post my findings

K.

Joined: Apr 7 2009
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Good luck, K . . . Q here,

Word, K, I sure hope you'll be under 24/7 medical supervision if you intend on going from that level of opioid intake to a total Zero (well, perhaps it might have an iota of mu-opioid receptor binding capability) opiod intake. I haven't seen the PI on this high priced junk but if it's like it's "weaker cousin" Ultram/Tramadol, then it will clearly state that it is Contraindicated for patients who are physically dependent on opioids (may precipitate withdrawals).

Me, I'm Rxed the 72 hr. Fentanyl 100 mcg p/h patch with OxycodoneIR 30 mg, up to #8 p/d prn for BTP, though I rarely take more than 2-3 p/d. Like you, K,  I'm also waiting for a pharmacy shipment . . . I'm switching to Fentora for BTP now that I finally got my insurance to approve it. All those analgesics are for the palliative treatment of severe, intractable cancer pain. I sure will be glad to see the end of the OxycodoneIR, it's so-called euphoric side effect is more of a 24/7 case of fuzz-brain to me. That's why I like Fentanyl so much, no euphoria . . . though if you were to go by what the media prints about it, you'd think that it was the greatest high since the Wright Bros. learned to fly.

Well good luck to you, K, please keep us posted on your NuCynta experiences . . . Q  

Joined: Jun 20 2008
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I think I would cry if my

I think I would cry if my doctor asked me to try Nucynta. Litterally.

Joined: Apr 16 2009
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Haha. Me too....QUINCY!!!!!

Haha. Me too....

QUINCY!!!!! Glad you are back! How you been? Whats new? besides the fentora (which is totally cool)?

Joined: Apr 7 2009
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WOOPH!!!

What a sour 3-6 weeks good buddy . . . I've been dealing with a truly bizarro vision problem that the Docs think was caused by my relatively small daily dosage of OxycodoneIR----average #3-4 30 mg p/d as needed for BTP. I've been Rxed #8 p/d prn for 2.7 years now but I rarely go there. That plus the cancer stress/depression/genital dimorphism and the bloody heat have taken a toll on the Q this late summer. I'm over the hump now though and I do not intend to look back . . . that's for sure 'n certain!!! 

Isn't that cool about the Fentora? It took some doing but the triage nurses at the Santa Fe Cancer Care Center would not take anything but a big fat YES for an answer on my HI approval for that outrageously expensive ($16.50 each for #120 p/m) but truly effective BTP drug. The acute pain certainly did it's share of damage but all is now squared away and my life will return to normal in just a few more weeks.

I'm beat, my friend . . . I'll hit you on the back channel real soon . . . Q 

Joined: Apr 16 2009
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I had to take some med a few

I had to take some med a few weeks ago that made my vision so blurred...its incredibly frustrating...

Glad to hear things are lookin' up...its been alot cooler next door here in AZ, I'd imagine its cooling down there too...it will be nice out soon and we will all feel better...

talk to you later

Joined: Jun 20 2008
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Q man, when you get your

Q man, when you get your Fentora script, if you dont mind, please share your results with me. I am curious as to the effectivness of Fentora coming from someone who's as articulate. Give me the full run down of how much it helped, how long it took to work, how long it lasted. Im curious to see how your experience compares to technical online medical sites. Ive used Actiq so I am eager to compare the two, not that it would work the same for my body chemistry, but gives me a general idea.

Thanks Q man, you da man Quincy Laughing & again, glad to hear you're doing better.

P.S. Would you mind sharing which type of cancer you have?

Joined: Apr 7 2009
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MrB and Oneir . . .

Hey Oneir, how you doin? I'm looking forward to seeing clearly again, that's fer sure! MrB, I'd be happy to fill everyone in on my Fentora results, good or bad. I know that the tech reports are sometimes a little too removed from the subjective experience of pain meds, that's why I like this forum.

I have a very aggressive type of early onset (at age 52) prostate cancer that has already metastisized beyond my prostate gland. It's inoperable and uncurable, currently I'm keeping it at bay with Lupron-Depo injections at a cost of $7,000 every 4 months. When that fails to work it's radiation time, after that fails I'm SOL at this time but I figure that's not gonna happen . . . I'm not that easy to kill off.

                                                                            Q

Joined: Jun 20 2008
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Q, you have a great spirit!!

Q, you have a great spirit!! Thanks for sharing that bit of personal information. Im glad you are one tough cookie, I enjoy what you have to say here. So your pain treatment is what they consider "palliative" correct?

Joined: Apr 7 2009
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You got part of it MrB . . .

The anti-androgen hormone treatment, Lupron-Depo, has flatlined my testosterone level to Zero. This is what causes the assorted pains and weirdnesses in those who are unfortunate enough to get prostate cancer at a relatively young age. If it is diagnosed in time, say at a PSA reading of 17-22 and a Gleason Score of 3-6, then the prostate gland can be removed.  In my case, my PSA went from about a 1.4 at age 51 to a 511 at age 52. The biopsy, taken after that stratospheric PSA, yielded a Gleason Score of 9, 10 is the highest or as bad as it gets. The older a guy gets, the less testosterone his testes and adrenal glands produce, hence he is already accustomed to a low level. When you are a healthy and virile man and your tes. level is dropped to Zero in a one month span your whole body rebels. The result is a lot of pain for some, I happen to be one of them.

As for the opioid pain treatment being palliative for the cancer itself, my answer would be no. Opioids do not relieve the symptoms of the cancer. However, they do relieve the pain caused by the therapy. I just love to parse questions . . . Q

Joined: Jun 20 2008
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Thanks for the info, I have

Thanks for the info, I have always been curious about that PSA poster on the PCP's & Proct.'s wall for who knows how long. I feel for you, I could not imagine having prostate cancer. I dont think many people realize how sensitive the prostate is. Having stress/anxiety related, chronic non bacterial prostatitis, I know the symptoms of that alone are very uncomfortable, let alone cancer & then the treatment make your body take up arms. Like I said, one tough cookie.

What was your pain level before you started treatment with the Lupron-Depo?

On "palliative" You are so funny, I was going to say it was a matter of symantecs, but your really got down to the "nitty gritty" and I cant argue with that!

Joined: May 18 2007
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just got prescribed nucynta hope it works better than described

I have been in pm for 3yrs for chronic knee pain from injuries and surgeries. Recently my insurance changed and the dr I had been seeing is not covered on my new insurance and is way too expensive to pay out of pocket  my medicine runs out on the 12th of this month so I have been looking for a new Dr which has been difficult to say the least.  I had knee surgery 5 months ago on both knees had latersl release and medial plication and they cleaned up some frayed cartliage also had torn tendons. I am thankful my insurance just now changed because , having to find a Dr during that would have been miserable.... I have been on a large dose of medicine for over a year now and i fell in my shower and broke my patella this past friday needless to say following my recent surgery this is very very painful  I am pretty much out of my medicine and don't have an app for a new pm dr til the 19th   I have surgery on monday and I my orthapedic surgeon does not seem to understand that someone who has been taking oxycontin 40mg 3 times a day and 30 mg of oxycodone 5 times a day  is not going to get any relief from this new drug. I only asked for them to prescribe something that will help with my pain until the 19th  didn't even expect them to give me oxycontin but, atleast the oxycodone. But I guess I too get to be a guinee pig the pharmacy where I live had to order it i wont even get it til in the morning but, since looking it up and reading all these comment I am afraid to take it because I get severe migraines on my own I cant imagine taking a pill that will give me a headache....... I get that they are not used to writting what I usually take but, they could atleast write me something that I know will help me with the pain I have not slept more that 5 hrs since I fell i am exhausted and it bad pain hopefully if it does not help i can get them to write me something else ... Anyone that has taken this medicine that has positive feedback or does it just not help?? Thanks

Joined: Apr 16 2009
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I've been following the posts

I've been following the posts on this medication and as you have seen, most are negative. Despite that I have seen several posters saying that it works great for them, even as good or better than percocet according to some users. You'll have to try it and let us know...the more input the better...

 

hope it helps you

Joined: Apr 7 2009
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Hey oneir, I know I haven't

Hey oneir, I know I haven't been on the board as much as usual but I've only seen 3 positive posts for NuCynta and not even one of them said it was better than a Percocet. Do you have any links to that effect, I'd like to see them please . . . Q

Joined: Mar 26 2009
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My Thoughts

Hello all. I live in New Jersey, and I was prescribed NuCynta on Monday. It took my pharmacy 5 days to get the medication. I took the first dose about an hour and a half ago, and so far so good. My pain level has dropped, and I have no headache. Thats not to say that it could not change at any time. And I wonder if it acts differently because of me taking Opana and OxyContin? As I continue to take this medication, I will try to update you all on my Progress. Also NuCynta has a website that has all the information and such on it.

 

In their studies, they compared it to Oxycodone IR 10/325mg. My doctor also compared it to Oxycodone, but that could just be because he read it or the drug rep told him that.

 

No, the only side effect I am having, is the euphoria. I feel a little buzzed.

Joined: Apr 7 2009
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That's good news MK . . .

Let's hope that it continues to help you reduce your pain. I read a study (put out by the manufacturer, unfortunately) that said something like 35% of the CPs that participated in one of their double blind tests preferred it to both Percocet 5/325 and Lortab 7.5/325. Having said that, I would like to provide some little known reasons for this product's timely development and FDA approval as well as some of it's questionable marketing ploys and the obscenely high uninsured price of #120 for $411. That price was provided by a poster, I would appreciate it if you could tell us what you were charged without insurance, MiccoKoi.

First, the development and release of this drug coincided with an FDA panel's recommendation that all "hybrid" or "combo" opioids be banned. That means analgesics like Vicodin, Percocet, and Tylenol3. The reason given was the number of deaths due to Tylenol overdoses. The manufacturer proposed to save lives by providing this Tylenol free analgesic. However, they market it not with an emphasis on it's lack of Tylenol/Acetominophen/APAP but on the fact that it doesn't contain Oxycodone. They say as little as possible about the fact that it is an addictive Opioid agonist even worse than Oxycodone. As for a price comparison with OxycodoneIR 5 mg, I've bought #300 OxycodoneIR 5 mg (Tylenol free) at Sam's Club for $45.68 and that is full retail, no insurance. And all the while the media blathers on about the horrors of opioids.

I'd like to be able to say that I don't get it but, unfortunately, I do get it . . . right in the very spot that the sun doesn't shine. Oh yeah, I almost forgot to add that the introduction of NuCynta happened to coincide with the "Great Oxycodone Shortage of the Winter of '08/'09". I don't believe in coincidences so I guess this NuCynta is fairly drowning in good luck. Look at the record:  1:  An FDA panel proposes the banning of the drugs that Nucynta is meant to compete against.   2:  Simultaneous with it's release it is almost impossible to obtain Tylenol free Oxycodone due to a SNAFU  (Military jargon for Situation Normal, All F'd Up) caused by the combined efforts of the DEA and the FDA.   3:  PMDs are Rx'ing NuCynta like it's the best thing since penicillin while the manufacturer is charging over 10 times as much as what NuCynta claims it is equivalent to . . . 10 mgs of OxycodoneIR. (I did the math, at the prices given here one dose of NuCynta costs about $3.41 and two 5 mg OxyIR tablets cost about $0.30.)

I hope that it's still doing it's job for you, MiccoKoi, you or your HI company certainly paid enough for it to do more than goldbrick. Please keep this link informed with your thoughts and experiences. Thanks loads . . .

                                                                     Undecided       Q       Smile

Joined: Apr 7 2009
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That's good news MK . . .

Let's hope that it continues to help you reduce your pain. I read a study (put out by the manufacturer, unfortunately) that said something like 35% of the CPs that participated in one of their double blind tests preferred it to both Percocet 5/325 and Lortab 7.5/325. Having said that, I would like to provide some little known reasons for this product's timely development and FDA approval as well as some of it's questionable marketing ploys and the obscenely high uninsured price of #120 for $411. That price was provided by a poster, I would appreciate it if you could tell us what you were charged without insurance, MiccoKoi.

First, the development and release of this drug coincided with an FDA panel's recommendation that all "hybrid" or "combo" opioids be banned. That means analgesics like Vicodin, Percocet, and Tylenol3. The reason given was the number of deaths due to Tylenol overdoses. The manufacturer proposed to save lives by providing this Tylenol free analgesic. However, they market it not with an emphasis on it's lack of Tylenol/Acetominophen/APAP but on the fact that it doesn't contain Oxycodone. They say as little as possible about the fact that it is an addictive Opioid agonist even worse than Oxycodone. As for a price comparison with OxycodoneIR 5 mg, I've bought #300 OxycodoneIR 5 mg (Tylenol free) at Sam's Club for $45.68 and that is full retail, no insurance. And all the while the media blathers on about the horrors of opioids.

I'd like to be able to say that I don't get it but, unfortunately, I do get it . . . right in the very spot that the sun doesn't shine. Oh yeah, I almost forgot to add that the introduction of NuCynta happened to coincide with the "Great Oxycodone Shortage of the Winter of '08/'09". I don't believe in coincidences so I guess this NuCynta is fairly drowning in good luck. Look at the record:  1:  An FDA panel proposes the banning of the drugs that Nucynta is meant to compete against.   2:  Simultaneous with it's release it is almost impossible to obtain Tylenol free Oxycodone due to a SNAFU  (Military jargon for Situation Normal, All F'd Up) caused by the combined efforts of the DEA and the FDA.   3:  PMDs are Rx'ing NuCynta like it's the best thing since penicillin while the manufacturer is charging over 10 times as much as what NuCynta claims it is equivalent to . . . 10 mgs of OxycodoneIR. (I did the math, at the prices given here one dose of NuCynta costs about $3.41 and two 5 mg OxyIR tablets cost about $0.30.)

I hope that it's still doing it's job for you, MiccoKoi, you or your HI company certainly paid enough for it to do more than goldbrick. Please keep this link informed with your thoughts and experiences. Thanks loads . . .

                                                                     Undecided       Q       Smile

Joined: Jul 15 2009
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What are you suffering from?

I just started taken th Nucytan and it seems to work well for me, other than making me dizzy a little bit and my heart rate rases. I have looked it up and the doctor told me it was nothing like Ketorlac or Tramadol. It's a bit stong but I have been on opiods for a while for bad headaches caused by low blood pressure so none of the migrane meds work really, only the Norco 10/350, and the Nucytan.

Joined: Apr 7 2009
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I'm wondering if maybe the

I'm wondering if maybe the dizziness is messing with the part of your brain that is in charge of spelling, Kikipk. What do you think?

                                                                       Wink     Q     Smile

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hehehehe

heheheheLaughing