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Joined: Sep 30 2009
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I have never been one to abuse medication. I have tried all of the street drugs many years ago. I don't do any of that anymore, in fact I do not even drink. I have had some serious pain in the last 6 months from a badly injured knee and shoulder resulting in some permenant damage and pain. My biggest hurdle is the fact I am a plumber and make a very good living at it but it's rough on the body.

For the past six months I have been taking 1600 mg IB and 60 mg Oxycodone. 15mg IR 4 x per day. I recently have been trying to taper off the oxy as I can feel the desire to take it even when I am not in as much pain. I do not want to tell my doctor this as he will simply take me off them immediately. He is not all that savy with pain meds as a pain management DR would be.

I had some recent surgery and cortizone injections that seem to be alleviating the pain to the point I only would need the Oxy when I cannot move my left arm at all. I did not think I was addicted to the oxy at all until I went 2 full days without, then had restless legs, sweating, no sleep, headache and some minor other side affects and the pain was too much to bear at times.

Any educated advice would be greatly appreciated. Thanks in advance!

Joined: Sep 27 2009
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tapering....

Hi, I am very understanding of how you feel... I was worried for many years that I was addicted to my pain meds.  I went through the same W/D symptoms so naturally I felt I was an addict..Then I happened upon a forum that had a discussion about addiction vs. dependance...it totally changed my thought process.   Most CP patients will become Dependent on their medications...it seems like a natural thing because we HAVE to take them to function...I think that we put too much pressure on ourselves abou this..Once I decided that I wasnt an addict and indeed just dependent my attitude changed.... Yes the WD's are not good when we go without, but the pain is awful too... If people want to lable me an addict then I can't stop them, but I can stop myself from feeling like one.

I hope this helped a little bit...Don't be so %@$$*## yourself, we are no less human because we are in pain..Wink

Joined: Jul 23 2009
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methadone and buprenorphine

methadone and buprenorphine work also to relieve mod. to severe pain......as an alternative, but like rhonda said, your DEPENDING on ONE OR THE OTHER to get off the oxycodone...

Joined: Sep 30 2009
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Thank You

It is really cool to have found a site like this where I won't be labeled as such. I have been viewing this site for quite some time now. I just didn't have the guts to sign up and post. I am so glad I did! I feel much better. Thank you again!

Joined: Apr 3 2009
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You for sure exhibit the

You for sure exhibit the behaviors of being dependent. Withdrawal on the other hand is going to happen if you take narcotics for any length of time. If you could go a day or two without taking them you would be better off! But that, and sadly for a good chunk of us, is not an option. My girlfriend for instance will go a fewdays without taking medicine so she doesn't become dependent upon then. She has pain every single day but she just rather ride out the 7 or 8 pain so she doesn't have to deal with it. I myself let things get out of hand to the point where I'm now on Suboxone because I told myself I had enough of it. Lucky for me at the same time the buprenorphine in the Suboxone does a good job of controlling my pain.

Don't kid yourself about it; especially since you are being honest about it. How do you know your doctor will discontinue your medicine? Have you asked him? I figure you are scared about loosing your prescription for your medicine which is standard behavior for addiction and depndence; heck I would be scared too! I think you should be completely honest to him about your situation and if you are not abusing you medicine you should be fine. Just next time you go to see him take your medicine with you so he can count how many you have taken to proove you are not abusing. This way you can put his mind to rest.
Trust me and the others here, you want to figure this out before that monkey on your back becomes a gorilla! And before you do become an addict - not saying you are or you will, it just might happen!

Just don't want you to become what I did and start to worry about what you are going to do because you can't get a refill for a week, dreaming about taking them and all sorts of things I wish not go mention here.

Joined: Sep 30 2009
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User offline. Last seen 5 weeks 4 days ago.
tacet-

I appreciate your input. I am actually taking the prescribed amount and can prove it to Doc. He just had told me how he dislikes this drug due to the dependancy it can cause.
I am in very little pain when I take it, I just realized he was correct in thinking I would get addicted. Now I find I am depending on it daily as prescribed to allow me to function without hurting.
I am concerned as to what long term use will do to my body and mind.
As I mentioned before I am not naïve to drugs as I had my years of doing the wrong thing, to be conservative, but those days where 20 yrs ago. I don't ever care to revisit that time. I own and operate a reputable business and I want to be able to continue but without pain whilst keeping my faculties about me.
Again I am not in pain now but have permanant damage to my shoulder which I need to use everyday and without these meds I am in pain but addiction aside what else is this medication doing to me?

Joined: Apr 16 2009
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Aside from addiction? Well,

Aside from addiction? Well, any time you put a synthetic compound into your body it does at least some internal damage. The parts of your body that ultimately have to process these chemicals can be negatively impacted either suddenly or gradually over time. It is unclear whether or not oxycodone itself causes long term liver or organ failure. Ibuprofen can certainly cause some stomach problems so be aware of that...

Long term use of oxycodone can lead to cognitive impairment in some people in areas like reasoning or memory. Really you are the only one who knows how it affects you personally. If you start to feel out of control then that right there should be enough to let you know there is a problem. It might start minor but when you are not in control of yourself everything can go wrong...

I can relate to you because I am currently taking 4 oxy IR per day in an effort to taper down. At my highest I was averaging about 180mgs per day but have got down to 120mgs average per day. Some days I have been taking 90mgs...some days 150. The point is its less than before! Unfortunately its a slow process and some days are easier than others. My shoulder pain is really starting to go away. My back is feeling better but still has its days but I tell you what, on the days when my back isn't hurting I feel like a new man! It gives me alot of motivation to get off the drugs. They have been such a huge help but I think we can all get too attached to things like this. For me its something like a safety blanket that I've grown used to having over the past year. During the past 12 months I've definitely needed to have that blanket there to pull over my head and cover me through some agonizing days. But now its time to deal with the cold, so to speak..

 

Best to you...keep us posted

Joined: Jun 13 2009
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Kudos Oneir

I sincerely applaud your efforts in cutting down and tapering the right way.  For so very many, the drugs become a crutch that is no longer needed.  If you could bottle the traits and feelings that made you realize the importance of standing on your own - you would make millions.  In the meantime, all I can offer you is "kudos"; from the bottom of my heart, I am so very proud of your efforts!

And to the OP that wondered about the long term effects of prescribed narcotics, have some faith in your physician.  A physician, whether PMD or PCP, routinely runs labwork to check for both liver and kidney insuffiencies; both can be affected by long term drug use.  If you a patient and are not having these types of routine screens performed.....what is it the Blue Collar guy says - "there's your sign".

Joined: Apr 16 2009
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Thanks red...One day I was

Thanks red...

One day I was outside and I stretched my arm back behind my head and it felt good for the first time in over a year. I had a few more good days without any severe pain breakouts (except when waking up from sleep, which still really bothers me). My next doctor's visit I told him I'm ready to start tapering and told him my plan. He said he was glad to see that I felt I could do without them soon but said my taper schedule was too rushed. I'm glad he corrected me cuz even this slower rate is tough...the point is I am making progress. My good days are better, my bad days are fewer and further in between and I am going longer between times when I take a pill. Instead of every 4 hours I'm going every 6 hours, roughly. I am looking forward to the fast approaching day when I don't have to take any pills. :)

 

Joined: Sep 30 2009
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in resonse

Yhank you both for your getting back to me. I'm only taking the 800 mg IB once or twice a day. I know the damage they can do. My doctor just hasn't said anything about long term use of the oxy except addiction and I get some minor side affects from them, however the relief from pain greatly out weighs those. My goal is to get off pain meds altogether too. I just want to be sure if I wind up on the oxy for several months before that happens, will it in any way cause me any permanent damage elsewhere! IE: organs, brain function.

Joined: Sep 30 2009
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whoops

Thank You!

For some reason I cannot edit from my phone.....weird~

Joined: Jun 13 2009
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Brain Function

As said above, and I am certainly not a physician, many prescribed narcotics can cause memory loss and that is the only brain problem I am aware of.  Some narcotics can though cause seizures - especially if used improperly, over used or mixed with something else (i.e. alcohol).  That said and you mentioned it yourself, each of us has to weigh the side effects, (real, perceived or potential), to the benefit we receive from the drug and decide if it is worth the risk.  A physician should be ordering tests when necessary, meaning this can be overlooked or delayed, when one is receiving narcotics from multiple physicians or is getting the narcotic illegally.  We all should be reading those pharmacy print-outs that come with any drug remembering that your pharmacist is a good source of information and should be consulted if you have questions about a particular medication and whether the medication is contraindicated or dangerous if used in conjunction with other meds, prescribed and over the counter.  Obviously long term use of narcotics present more issues.

Joined: Sep 30 2009
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Yeah I have read the pamphlet

Yeah I have read the pamphlet that comes with it. I do not drink at all or take any over the counter meds. We tried many different pain meds and this has been the most effective by far! My Dr and pharm have never mentioned seizures if taken as directed. If I thought for a minute that I,d have one I'd opt first to pass out from the pain! Catch 22, have an appt in 2 weeks, I'll have to see where we go from here the pain sucks but I am not going to become a vegetable from 60 mg of oxy per day that really works!

Joined: Mar 24 2008
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Hey man

Hey man. Its just gunna be up to you to have control over your usage. You seem to understand that its a "trap" for you but doctors Can not stop giving these medicines to patients because of your problem. Its just up to you man. You know your limits. Perhaps you can see an adictionologist (sp) or a behavioral psychologist. Its hard to do I can understand but it gets to the point where there are people who say what you say and then get "picked" up by the DEA to prove its bad and makes others suffer when all along its up to the person who is having the problem to deal with their own addiction issues. We cant stop getting and taking opiates. if we did, we would suffer to the point of there being no enjoyment of life. People with cancer and degenerative diseases which are in such pain that to live without medicine is not to live at all. I understand that you arent saying that people should suffer for your issues but for the big picture, this is what happends to us. man I pray you get the help you need. I pray every night that people with your condition get the RIGHT help for the issue.

 

Good Luck!!!

Joined: Jun 13 2009
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Seizures

I think you misread what I wrote; seizures can occur if you misuse/abuse/exceed your prescribed dose or if you mix certain narcotics with alcohol or other drugs.  Not to say it could not happen, but I don't know that taking what you are supposed to would cause seizures. 

My husband died of a Grand Mal seizure, the result of taking unprescribed and illegally obtained methadone.....clear from his autopsy, he died of a lethal dose of methadone, along with a lethal level of valium and was legally drunk.  He had also smoked pot that day.  Pretty smart, wasn't he? 

Joined: Sep 30 2009
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Yes I just went back and read

Yes I just went back and read it again I misunderstood. I might be ok with the meds prescribed until I can take a long time away from my work and go through more surgery and rigorous PT along with more cortizone injections. My biggest problem is that I own and run my own business I have worked years to build, it took me 16 yrs to learn all of what I do and I have tried 3 times over the years to train someone else to do what I do. It never panned out and almost bankrupted me. It is very hard work and requires a lot of lifting and straining of the body. I am otherwise in great shape except I had an accident which messed up a knee I've since had fixed (succesful surgery) and is about 80 percent back to normal. My shoulder on the other hand is messed up pretty bad and it will never be right again. I cannot afford to simply walk away from this business or even sell it and get near what it's worth. I make a great income doing it and have a wife with a disability so she's only able to do my bookwork and such.
On my current medication I am able to keep plugging along with very little pain.
Sorry for the long story, I just want to be sure I am still available to my wife and kids mentally if I continue on this regimen. Also wanted to see if anyone has heard of any other adverse reaction to oxycodone IR with no APAP whatsoever.
Thank you to all who have responded!! What a great group of people you are!

Joined: Jun 20 2008
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My uncle owns his own

My uncle owns his own business that is labor intensive so I know how hard it is for you to get away. Every vacation we took, about 4 big ones a year, not counting day trips to theme parks, he told me he had to work twice as hard the week before and twice as hard the week after.

Joined: Oct 19 2009
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i suggest you dont tell your

i suggest you dont tell your doctor if you have pain then you need to get your medicene. They key is to not take it unless you need it. It becomes a habbit that feels incredible and the next thing you know your hooked. You can become addicted even if you dont abuse it. I believe you are doing the right thing takeing it when it becomes needed. Just try to go a few days in between doses for a couple and that should help keep the with drawl symptoms awayand it should allow you to take them daily if needed without the sweats when you dont have it.

 

Joined: Oct 17 2009
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If you're

...taking 15mg q.i.d. on a long term basis, you cannot just "go a few days between doses." Your body will let you know thats not how it works.

Do whatever you need to keep your pain under control. Do not abuse your medication. That way, if you get to a point where addiction does become an issue, as opposed to dependece, your doctor will be MUCH more receptive to your request for help, (i.e. taper plan, referral, etc.). That's a much better way in my eyes.

Good luck.

Joined: Jul 18 2009
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Why the bravado about trying not to take meds as prescribed?

I remember a thread from a couple of months ago shooting down the idea that being a "good" pain patient means trying to take less than what's prescribed. I used to think that way but it's not the right approach for me. For me, trying to take leas than prescribed produced peaks and valleys - a real impedent to leading a normal life. Plus, for those who signed a pain contract, get tested, or are subjected to pill counts, takin less than prescribed looks like hoarding or diverting. If you're concerned about addiction (not just physical dependence), ask yourself whether you've abused the meds. Are you takin more than prescribed? Do you take them to achieve a high or really just for the pain. Only you know. If you're that worried about it, talk to your doctr about getting off he oxycodone. For me, the try not to take it until I really need it had to do with my own failure to accept the reality of my pain. What's funny (funny cool not ha ha) is that acceptance that the situation is chronic and not acute, real not imagined, something to be dealt with and not wished away, makes it easier to deal with. Just my two cents! Take care and good luck.
Mrs. P

Joined: Mar 19 2009
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Wow

This is amazing what you said in your post.   I recently ran out of my oxy 10/325 and I guess it was about one week prior.  Then I just started taking my Ultram which helps me thru w/d's because sometimes I would take more then scheduled of my oxy's.  The reason why I am emailing you back is this.  I had the biggest scare in my life.  last week, I had a seizure. A long one too, and top it off, friend and me were on lunch break and she had to do some business at the bank and I sat down waiting on her, the siezure lasted 3 minutes, and of course 911 was called and I was wheeled out quickly from the EMS folks.  Ive never had any not any siezures in my life.  The night before I like always take my ultram like 2 (50mgs) and later on that night I drank probably about 5 glasses of red wine.  The day of the siezure before I left I took 3 Utrams. Of course I wasnt drinking then I was at work on lunch break. But again i took my ultram would this maybe have caused my siezure?  I had all the lab work at the ER and a CT all came back normal except my iron is really low.  I just have never been so scared in my life.  I have not touched another drink since then thinking that it might have had something to do with the siezure.  I would like to know if anyone has any info on what I just said. Thanks for your time on this email.

Joined: Dec 26 2004
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Ultram and Seizures

Tike, seizures are a very distinct possibility with Ultram (tramadol).

Red wine does not cause seizures.  But seizures are a possibility if you are an alcoholic and are withdrawing from alcohol.

Here is the warning excerpt from the Ultram (tramadol) package insert:


WARNINGS

Seizure Risk

Seizures have been reported in patients receiving ULTRAM® within the recommended dosage range. Spontaneous post-marketing reports indicate that seizure risk is increased with doses of ULTRAM® above the recommended range. Concomitant use of ULTRAM® increases the seizure risk in patients taking:

  • Selective serotonin re-uptake inhibitors (SSRI antidepressants or anorectics),
  • Tricyclic antidepressants (TCAs), and other tricyclic compounds (e.g., cyclobenzaprine, promethazine, etc.), or
  • Other opioids.

Administration of ULTRAM® may enhance the seizure risk in patients taking:

Risk of convulsions may also increase in patients with epilepsy, those with a history of seizures, or in patients with a recognized risk for seizure (such as head trauma, metabolic disorders, alcohol and drug withdrawal, CNS infections). In ULTRAM® overdose, naloxone administration may increase the risk of seizure.

Serotonin Syndrome Risk

The development of a potentially life-threatening serotonin syndrome may occur with the use of tramadol products, including ULTRAM®, particularly with concomitant use of serotonergic drugs such as SSRIs, SNRIs, TCAs, MAOIs, and triptans, with drugs which impair metabolism of serotonin (including MAOIs), and with drugs which impair metabolism of tramadol (CYP2D6 and CYP3A4 inhibitors). This may occur within the recommended dose (see CLINICAL PHARMACOLOGY, Pharmacokinetics).

Serotonin syndrome may include mental-status changes (e.g., agitation, hallucinations, coma), autonomic instability (e.g., tachycardia, labile blood pressure, hyperthermia), neuromuscular aberrations (e.g., hyperreflexia, incoordination) and/or gastrointestinal symptoms (e.g., nausea, vomiting, diarrhea).


You can read the entire package insert at DailyMed (a National Institutes of Health website).


Joined: Apr 16 2009
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The seizure risk was one of

The seizure risk was one of the biggest red flags about ultram when I first heard of it. Many people require doses that are close to the seizure threshold. It doesn't seem worth the risk for relatively little pain relief...in your case, tike, I can understand why you are taking it but you should definitely be careful about drinking alcohol at the same time.