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In True pain and addictedI am 34 years old and live in Kentucky. I have 5 degenerative disks in my back L-1 through L-5s-1 and 2 in my neck C-6 and C-7. My doctor told me for six months I was just bending the wrong way and refused to even do an x-ray, so I went to a chiropractor and he did the x-ray, finally my doctor had my MRIs and just gives me Hydrocodone 10s. I have been on them for 4 years, it started with a kidney stone, then this, but he will not send me to a specialist. He gets mad and says nobody will do anything for me because I am so young. I have a very high tolerance for them and even go through withdrawals after about 8 hours without. I am scared to tell him this in fear he will cut me off. I have true pain though. I am having a hard time finding another doctor, thanks to all who just want the high, they are very skeptical about taking new patients with back pain. I am scared to have the surgery, but I am in so much pain I am so ready to do it but cannot get referred to even a pain clinic. I have to do something about my addiction, but I am in so much pain also. I work six days a week, but cannot do even everyday things without at least three pills. Any suggestions on how to approach my doctor with this? He is so moody. I am truly miserable and wondering what to do. I run out all the time because of my high tolerance to them. ( categories: Chronic Pain and Pain Management )
Forgot to mention my MRIs
Forgot to mention my MRIs showed alot of artritis and I have 2 ganglion sists, one on each side on the bottom of my back where my buttox starts, so not sure if it's all or just what is causing the pain. My neck doesn't hurt as much it is all in my lower back and my doc calls it MILD, and it is far from mild!!! I hurt everyday. TOO YOUNG??!!!
If you are too young then i don't want to know what he would say to me, i am 24 and i am in pain management for chronic pain in the back and head, i have chronic migraines compounding all of this as well. I also have a herniated disk that arose at 22, i seem to be the exception to every rule in the book for age and degenerative disorders/pain. i take narcotics just to function normally, I have oxycontins 40 mg and oxycodone 15mg for pain (which im in the process of changing). i am not ADDICTED, I am DEPENDENT. there is a difference and you should explain that to your doctor. addicts use for the high's and to masque their problems and pain, dependents use to function normally and to live a daily life that is as normal as possible. A doctor who tells you all of that is just trying to keep you around and i feel doesn't really care about you, you need to see a specialist as well as a Pain Management doctor. no matter what you need to take care of yourself so you can live a normal life by whatever means necessary. Normal is something that we don't have the luxury of living, but we can get assistance to feel normal. I have had chronic migraines since i was 13, debilitating ones, and i recently had a surgery last year that caused unexplainable chronic pain in my head/neck. i didn't take heavy narcotics till recently, and did the natural and non narcotic route prior for many many years, but i always had my 15mg oxycodone for the emergencies, either that or i am in the hospital, at least once a month. more people with much more experience will be posting giving you great advice, dont stress, this site has some of the most knowledgable, kind and understanding people i have ever met, they have amazing insight. How long have you seen this doc of yours, and how long has he Rx'd the hydrocodone?? you need a long acting pain
my suggestion is that you need a long acting pain medication so that you don't have to keep taking pills, and possibly a breakthrough med for over-the-top pain. Go to a pain management doctor, sign a pain contract (basically a trust contract) and get your life back. i am no doc, i have some experience, but i also have wonderful opions :)Yea you are right I guess I
Yea you are right I guess I am dependant because I do not take for the high. I asked him about a year ago to switch me to percs because my tolerance but he absolutely refused and got mad. My question is do I have to be referred to a pain management?
I have seen the doc for
I have seen the doc for about 6 years and he rxd the hydros for about 4. It actually started with a cyst on my ovary then a kidney stone and now this so he will not even change me. That's what I think is insane he knows the tolerances get high and the factors with the liver and all that. He won't do anything but give me the hydros. I am having trouble finding another doc so I don't know what to do. If you have to be referred to pain management, I don't think he will do that. How should I approach him with it because he is so moody and he gets mad. I guess I am chicken.
I live in West Virginia
And I know what you mean about the doctors being a little "too" cautious about writing scripts for people.. I have gone through the same thing for horrible pain in my right foot that just doesnt go away. If I go any time without pain medicine it just flares up so bad I cant even wear a sock..I was just discharged from my previous doctors care and now am going to a rural health care doctor.. My first appointment is tomorrow.. Im a bit nervous about it because of all those who choose to abuse their meds and those who just straight up rob pharmacies. Im wondering if he will just cut me off, when in actuality I need something a little stronger than the 7.5 lortabs Im on now..I only get minimal relief from them and they dont last long...The best thing I can tell you to do is just be honest with him..They can run pharmaceutical boards to make sure you arent filling multiple scripts from different doctors..Id just invite him to do that and just ask if he could even put you on a hydro that doesnt contain as much acetimenophen(sp?) if youre worried about liver issues, etc...But Id just be very candid with him and maybe even tell him that youre afraid to talk to him because of various reactions youve gotten in the past... Good Luck Stand up for yourself
In my opinion angel, i think the only way things are going to change are if you are the one to make it happen. you would only need a referral if your insurance requires it, it couldn't hurt to just call a center for pain relief and ask them if you need one to get in, perhaps schedule a consultation with one of the doctors and explain your story, and be completely honest. I feel that taking that many vicodin/hydrocodone with Tylenol for that long is not good for your liver, even if it is in tolerable amounts. i'm sure you know the 24hr limit of acetominophen is 4000mg. The best hydrocodone is the norco, 10/325. if you look at the opioid comparison chart table by rawoody under the discussion of prescription and OTC meds forum , you'll see that oxycodone is 1.5-2.5 times as potent as hydrocodone. As far as your doctor, he gets mad, and he is moody, he is not being professional. do not be rude and do not make a scene while talking to him , but no one should ever get upset with you if you express valid concerns. let him know you need more relief to function normally, you probably lost the "high" a long time ago and only feel pain relief, and explain that to him. He needs to understand that you are suffering and since you have such a long relationship he needs to do his job and help you have a better quality of life. In my opinion, i feel if this doesn't get through to him, and he still gets upset and moody/mad at you that you express the fact that you will be pursuing a pain management doctor who can monitor your meds and moods to make sure that nothing gets out of control and that someone will always be there to watch over your regiment and well being (key part) since he himself does not care enough to do it. remember all the while to be respectful to your doctor, otherwise he will just suspect you are pain seeking. Explore other options in the meantime, i'm telling you i got into my Pain management clinic by calling and asking for a consultation to see if they can help. First get a copy of your records from your current doctors office and copies of your mri/imaging and bring it with you to see if they can help you. Take charge of your life and create your own reality, it all starts with you taking the first step. :) best of luck and definately let us know how things work out, Private message me if you have any other questions. I don't think your chicken, i think you are extremely capable to handle this situation -Enigmuh I would consider switching docs
I would def. consider switching docs...I know it is very hard to find a doctor that you like...I too live in KY, and there are ALOT of prescription pain med seekers/addicts that do ruin it for those of us who actually need and use the medicine legally. The best thing i think you can do is just sit down with your doctor and have a frank discussion about your narcotic usage. Explain to him/her that if he/she is not comfortable prescribing narc pain meds on a consistent basis for you, then maybe you should consider finding another doc or just asking him for a referral to a PM doc...Also go online, maybe you can find one without a referal...Best of luck to you...Also, what part of ky do you live in...Maybe i could help... you can email me on here if u like.....
I'm not a doctor, but would LOVE to play one on tv.... Ray You most definetly need a new doctor
Have you checked with your Chiropractor for a refferal. He may be able to put you a different track. I know mine helped me out a lot with my Mylogram, MRI's and even finding a good surgeon. I am also in pain management and did not need a refferal. I pulled my records from the Chiro/Surgeon and just went on my own. Good Luck. And I agree you will have to be proactive and make something happen. Nationwide Problem?
Hi I am 36 years old and I live in Massachusetts. I also suffer from DDD, Sciatica, 3 Herniated disks, bone spur /arthritis on the vertbra and fluid in the marrow. I have seen several Dr's and Neurosurgeon's over the past two/three years. My neuro symptoms have since left me, and I am suffering wtih the pain from the DDD and fluid in marrow. I CAN NOT function unless I am taking my percocet (1 -5/325) 3 times a day and 2 Soma twice day. I have been on those for over a year now, and I have to be honest, they are definitly not getting me through the day anymore. I tried a "SQUARE in the eye" converstaon with my doctor (Which I signed a narcotic agreement with, so she KNOWS I am not getting meds anywhere else from anyone else) and frankly, she does not care "Make them work, I dont want you getting addicted" What I am suprised to see is that she is unaware that people get DEPENDANT on them after prolonged use, how can we all know that and my doctor does NOT? I asked her to leave me on the 5mg twice a day and just give me ONE 7.5 at night so I can get to sleep (that is when it is the worst).. But I was met with skeptisim and looks of distrust. Thanks to drug addicts, people like us, like me, who NEED this medication to function until surgury can be done are left out in the cold. I was even told "I know you need more, but the law really watches the practice so we have to stay under the radar" What the hell is that????? It is VERY frustrating and causes me alot of stress. I take them as I need them throughout the month, then I am always left with a week or more until my next refill with NOTHING. I am down to cutting 5's in half and trying to streach them out, but that usually results in missed days from work and just not being able to function on a normal basis. I TRULY wish I could find a doctor in my state who was NOT AFRAID to prescribe this medication and CHANGE it as needed as the years go by and make OBVIOUS adjustments that need to be made to the dosage. My doctor thinks I should be thankful enough that she is willing to give me what I have. My sympoms are real, they have been proven and being truthful, looking them in the eye and being honest gets you NO WHERE. But you cant go look for a new doctor either, that is called DOCTOR shopping, so be careful, it only makes you look MORE like an addict and not a regular patient exercising her rights to explore treatment. I tried a pain center in boston and they will only presctibe ANTI-DEPRESSANTS with WAY more side affects than percocet. I tried it, I have to admit.. I was physcially unable to do ANYTHING until I went back on the percocet. I have given up trying and will just stay this course until I can have the surgury WHICH I have been told probably wont even work. I am sad to say I have lost faith in doctors and until I hear of one that is actually strong enough to do the right thing. I wish you all better luck than me. :)
"Make them work, I dont want
"Make them work, I dont want you getting addicted" This is not bad advice! The more narcotic you take the more tolerant you become, and after a few weeks the pain returns and you are escalating your dosage again. Your doctor probably understands the difference between depedancy and addiction. Do you have other risk factors for addiction? If so, she may be particularly reluctant to increase your narcotic dosage. If she is concerned about addiction has she considered treating you with Suboxone for pain? I have had several long conversations with my addiction patients about proper pain management and the safety of prescription narcotics. Most of them think prescription narcotics are way to readily available. "I have lost faith in doctors and until I hear of one that is actually strong enough to do the right thing." The most difficult thing for a doctor to do is to tell a patient "no", when the patient is suffering and desperate for relief. PainbGone
_We all know by now that all doctors are different, some are cool and are your friends, and some are stiff and rigid. Its hard to say that doctors don't care about their patients, and don't understand dependency, or that they don't understand pain. I would never say that because they deal with more than just 1 person in pain, especially those at a PAIN center. They deal with it everyday, and here different stories of the same diseases, and they understand that everyone reacts differently to different meds. Looking them in the eyes is not going to magically get you pills and better scripts, its to show your honesty and respect for them, why don't you comply with it and continually tell her the same thing, because you're doing that anyway, but maybe this time painbgone you don't get upset, be understanding of where she is coming from. i don't know you, and you seem to be mad at the world of doctors because you don't get what you want/may need. she knows people become dependent and tolerant, just because they don't give you stronger meds doesn't mean they don't care, it means they do care about what happens to you. she wants to see if you can manage it, not get stressed out, which raises blood pressure and actually can cause you to be in more pain. Now you take them as you need, not as Rx'd and you build a tolerance quicker then are left out in the cold because you ran out early due to your over medicating yourself. by the time you get back in to see the doctor your ticked off, and demand more drugs. i don't know about anyone else but that IS PILL SEEKING. Take as prescribed, if you go above and beyond that then you are falling in the category of abusing your meds. I bet the week and a half without ANY meds is worse than taking as prescribed. never go against what your doctor Rx's and dictates. otherwise she's going to stop your prescriptions in a heartbeat because that is technically now making you addicted, overuse and not following directed therapy. think about your irational behavior. its not healthy. __________________________________________ I can't help you if you're not willing to help yourself... ~ Enigmuh A non-medical professional
Surgery is usually not the
Surgery is usually not the right answer for back pain without neurologic findings. Have you tried anything else except narcotics? Physical therapy, tens unit, NSAIDs, etc. Are you still trying to do a job that requires physical labor? If you haven't tried these other treatments, any doctor worth his salt would be reluctant to put you on narcotics for more than a few weeks, or do an MRI until the symptoms had been persistant for 6 months or more. An abnormality on your MRI does not confirm that you have a legitimate pain issue or tell you where your pain is coming from. I have had these symptoms
I have had these symptoms and this problem for over two years now and my MRIs showed and my doctor said that my discs are so flat that my vertebrae are just rubbing together, he reviewed the MRIs with me and even got a model to show me, so I believe that constitutes neurological findings, I am not just a "seeker" per say, as I said I have had these problems for little over two years, and I do have a job which requires some physical labor, I work six days a week to support me and my son, and I cannot leave my job because I have excellent benefits. I have tried physical therapy and my chiropractor has told me it is much too complicated for a chiropractor to handle. I also have the same problems with two discs in the bottom of neck C-6 and C-7. The physical therapy did not work for me at all. I have tried patches and they don't seem to help either. My doctor did review my MRIs with me and even got out a model to show me how my discs were and said that they were just so flat that my vertebrae were rubbing together and also said the type of surgery would be a fusion. They would have to take bone out of my hip and fuse them back together. That is one reason he says I am so young for this type of surgery, and it will be very complicated because there are five, L-1 through L-5S1, my whole lower back. He has also told me that my job and the work I do, including everyday work is not helping, it will just make it worse. But, as I say I cannot help that. I get no help from my sons father and it is just me to support him. Neurologic findings are
Neurologic findings are things like decreased sensation, abornomal reflexes, decreased strength, and impaired balance. Then the neurologic findings have to correspond with the anatomic abnormalities on the MRI. Weakness in your right arm does not correspond to a disc herniation at L2-L3 for example. Other causes of the neurologic symptoms have to be ruled out such as carpel tunnel syndrome or multiple sclerosis. I sent a guy to the neruosurgeon for profound weakness and numbness in his left leg and pain in his low back and and abnormal lumbar MRI. Turns out, he ended up having multiple sclerosis! Just make it work
My docs (both HIV and PSYCH) tell me that about my xanax and lortab....the give a a set amount every month, and I have to MAKE IT WORK....I'm sure no doctor wants any of their patients addicted to anything....so I make it work... Remember: Just do it.. EVERY PILL EVERY DAY WOW! I just happened to
WOW! I just happened to stumble on this site & these postings. What a relief to know that there are others like me! I've been struggling since 1990 with problems with my back after a work injury. I'm 51 & now have severe degenerative disc disease (4 levels) & have been disabled since 1997. I was doing a relatively physical job (R.N. in a hospital) when this all started & as the problems got worse I went to a desk job (still as an R.N. but doing "paperwork") until I couldn't tolerate sitting at a desk & have been disabled since. I have been through just about everything except surgery & a TENS unit-pain management, P.T., epidural & facet injections, etc. My last pain management doc had me on long acting morphine & fast acting oxycodone for breakthrough pain, but since surgery wasn't an option at the time, I decided I didn't want to be on morphine for too long because there isn't much else to take after that & I knew my problems weren't going away. That was about 4 years ago & have since been on Vicodin HP. Well, my doc will only allow me 4 a day and that barely helps, so no matter what I'm doing I'm always in pain. It just depends on what I'm doing as to how bad the pain is. No matter what I tell my doc, he just won't do anything but give me what he gives me every month. I just saw my neurosurgeon again & he still doesn't want to do surgery until I have neurological deficits or I'm ready to "put my head in the oven & turn on the gas" because of the extent of the surgery he'll have to do. I'm going to try injections again just to see if they'll help this time. I'm going to take your advice & talk to my doc more openly, but I just don't see him doing anything new, but I am petrified to do it because I don't want him to think I just want more so I can get "high"-I just don't want to hurt so bad all the time. Guess it's bad no matter where you are with docs being afraid to give people what they need to make them comfortable because of all the people who don't use their meds the "right" way. I just wanted you all to know how much it helped reading your comments & I'll take any other adivce you might have.
- Ok, first... Angel, dont
- Ok, first... Angel, dont feel you need to justify anything to anyone for any reason, you know for a fact your pain is real and you need to do something about it. Get a new doctor, or a second/third opinion at least, it couldn't help. Obviously we are looking at a situation where surgery right now is not an option due to the fact that you are too young for the fusion, and more importantly, you have to support your family (sorry for the father that doesn't accept his responsibilities). Second you need to take care of yourself as i have said before, but this job, this job is rough on you and could possibly make the situation that much worse in the future, we have to start thinking long term, you don't want to injure yourself so bad that you can't work period, i know the benefits are great, but you and your son's well being are much more important. maybe there is a desk job, have you talked to your boss about perhaps a different area of work within the same company so you can keep your benefits? we have to start thinking outside the box a bit. Second. redhot, i'm very happy that we were able to help without knowing your situation, but nothing feels better than knowing your not alone. We all have our crosses to bear, some are worse and some are more stressful etc, if you have any specific questions feel free to post or private message any one of us. I love helping others, because it makes me feel good. To know there are others who don't abuse the medications we are on helps in many ways, it gives you something of a support group where you know you can let loose, and not worry about people judging you, looking down on you, making fun of you etc. How long have you been with your doctor, and have you established a level of trust where you and him can talk HONESTLY and OPENLY about both your pain, pain management and regiments/medications? Have you gotten a second opinion about your surgery? it sounds like it would only make your life worse if you can only get it when you are about ready to "stick your head in the oven" maybe talk to someone else, or at least a consultation after you get a copy of your records and imaging. Now about your meds, there are other meds that are long acting that can help you, and once you are on them you will become dependent after a while, theres no fighting that, and addiction is very different than dependency. You will reach a point when you don't get the 'high' and recieve relief that way you will be able to lead somewhat of a normal life. Unfortunately for us normality is something we must have, but will truly never have. So what we must do is make our lives as normal as possible by any healthy and means necessary . With that being said you need to (this is important) look your doctor straight in the eyes and explain to him exactly what is going on and exactly what you need, meaning a controlled regiment of pain management, let him worry about the amounts and of what to prescribe, don't come out firing meds at him and saying you want this and that. Just be HONEST and if you don't look him in the eyes he'll think your A. lying or B. seeking meds. If he's any type of good doctor he'll be able to tell youre not lying, come right out and say you would like a contract so that you just want to see him for the regiment and be able to have someone there to care for you and see you as often as possible. This isn't a sly move, its the truth. Let me know if you need anything else. Both of you take care and stand up for yourself, no one is a mind reader and can tell every day is rough, you must convey it to them openly and honestly. I'm no doctor, i'm just a man with intelligent opinions. -Enigmuh Ask Me Anything......
I've been with my doc for 7 years and have a great relationship with him-I can talk to him about anything and he listens. It just seems that when I try to tell him that the meds don't work as well as before he's not willing to change them. I learned a long time ago-for other reasons-to always look someone straight in the eye & do so every time we talk. It's not that I feel like he doesn't believe how much pain I'm in-I know he does, it's just that he'll repeat an MRI or send me to the surgeon, etc & never discuss my meds except to say "you're on the max dose". I've never asked him to change them to a specific drug. I'm not sure if he's afraid to prescribe (law enforcement really comes down on docs around here) or if he's concerned about the long term health effects from taking pain meds (my husband passed away 2 years ago & I'm on my own to raise my 12 y.o. daughter). I lost the "high" from pain meds a long time ago & have been getting sick-nausea primarily-very frequently for approximately the last 6 months. I've told him about it & he's tried to figure out why but nothing is wrong. Well, after reading these postings, I'm willing to bet it's because of my body's physical dependence on the Vicodin. I never even put it together until now. With all of the insight I've gotten here, I will definitely be telling him my concerns about that. Right now not only am I in pain, but sick on top of it. I already have a "narcotic contract" with him, have done so for a long time, & he is the only doc I get pain meds from. I have seen 3 different neurosurgeons, including the top one in the state, and all have concurred that because of the extent of the surgery that will have to be done it is better to wait as long as possible to do any surgery. The physiatrist that I see also concurs. All of the docs agree there is a good possibility that surgery won't even get rid of the pain anyway. I know I'm no spring chicken, but because I'm still relatively young they want to delay surgery as long as possible. You've helped again & have given me insight about what to do at my next appointment. Keep the info coming! 1redhotnascarrn I feel for you
I know exactly how you feel...Being HIV+ and going to a teaching hospital/clinic for treatment, you get a team of doctors and it gets frustrating when your pain isn't adequately treated, it makes u feel like a drug addict. I think honesty is always the best policy with your doctor. I am honest with all of mine (all 5 of them) about everything including marijuana and have told all of them that I feel that i'm an intelligent, informed, educated patient and i'm not the doctor, all I can tell you is how the medication works, or in your case doesn't work and be very frank about the fact that you aren't drug seeking, or diverting your medications, offering to take a UA, etc, and make your "case" to him and ask to have the dosage re-evaluated. You have to be your own advocate, no one else is gonna do it for you. That's always worked well for me and I have an excellent, open, honest, frank relationship with all my healthcare providers. Good luck
I'm not a doctor, but would LOVE to play one on tv.... Ray - i mean red hot, are you
- i mean red hot, are you on long acting vicodin or short acting? and have you thought of switching to even say, percocet. Rawoody, in his comparison table, states that percocet is 1.5-2.5x as potent as hydrocodone, right there you should get some extra relief and if you are on the 10mg vic's you are on the max strength, but i don't know if its really the max dose. basically one 10mg percocet/oxycodone we could say is ~equal to 20mg of Vicodin/hydrocodone. bring that up to him, more of temporary switch in therapy to see if it helps over a 3_5 day period (i usually go for that, sometimes a week) and re-assess at the next appointment. When you speak to him about the meds as you look him in the eye(did you learn by speaking to a cop? thats how i learned, hee hee) and speak confidently and clearly, not shy or, um..you know..my meds arent well...really working that well... Instead, I am getting some relief from my meds but not enough, is there another avenue we could attempt for a short term period to see if i could get better relief with something else, because if im on the max dose then we need to perhaps try something else. If that doesn't work, and he says no blah blah blah, say this exact phrase..."Will you please help me understand ______(whatever he said to you that meant no)" he cannot get upset at this statement, you are polite and asking him to explain himself in an non-threatening way. give it a shot, i am in psychology so if you have any q's for me in that area too let me know I'm no doctor, i'm just a man with intelligent opinions. -Enigmuh eye contact
That is one of the most important things...don't flounder and skate around the subject....look the man square in the eye and tell him authortatively take the dosage needs to be re-evaluated. no umm, or maybes.....Just say it.. I'm not a doctor, but would LOVE to play one on tv.... Ray Enigmuh, there are no
Enigmuh, there are no long-acting vicodin, only immediate-release. You are right in that percocet is usually determined to be 1.5x the strength of hydrocodone, meaning it would take 15mg of hydrocodone to equal the strength of 10mg of percocet. Also, if someone is on 10mg of vics (hydrocodone), it does not automatically mean they are on the max dose. The "max" dose is determined by the amount of of acetaminophen that is taken. If one is taking 10/650's, then the total one could take in a day will be different than if one is taking 10/325's. the maximum recommended dose of tylenol per day is no more than 4000mg. If one is taking the 10/650 (usually called Lortabs), then the max a day would be 6. However if one is taking the 10/325 (usually called Norco), then the max a day would be 12. One thing to be sure to do at the doc when you are trying to ask to raise your meds is not to say "I need more" or "We need to raise it", instead say "It is not helping as much anymore", or "I am not getting as much relief as I used to". This will let the doctor know you are becoming tolerant to your meds. Most docs who know anything know that most people build a tolerance in about 6 months. I would not suggest when talking to your doc about your meds to suggest going to "something else" if you are at your max of your pain meds. This would of course be up to the doc. Also, don't just concentrate of discussing the pain meds. Ask about other alternatives even if you don't really want it, such as anti-inflamatories, nerve pain meds like Gabapetin or Lyrica, anti-depressants with pain-relieving qualities such as Cymbalta, and other means like Lidoderm patches, Capsasin cream, etc. Even remind the doc that you are using more ice/heating pads than you used to, or whatever other remedies you used to use. Let the doc know what activities you are being limited from doing because of this extra pain. The point of being on a constant pain regime is to be functional in life, and this should be every doc's goal with pain meds, not matter what the regime has to be. Don't be afraid to also let the doc know that you do research about everything you take or are going through so they know why you know so much about things. I just recently was prescribed a new pain med and had to educate my doc on new practices with that med that almost excluded it as a good choice for me. I'm a social worker, not a medical professional. All comments and thoughts are simply my opinion and experience. Much appreciated gifts
- i said max strength,not max dose, i understand the concept of acetominophen, i simply said the 10mg vicodin were the strongest. didn't know about the long acting vicodin, or lack there of i should say, and you are completely right about what you say to the doctors, you can't fumble around and straight up ask for what you want, you have to be honest and state what relief you are getting/not getting, and how it affects you and your daily life. Dont be shy or timid when speaking, talk to him like he is your friend, he should technically be a friend, because friends don't put another friend in a bad position, they are there to help. If you aren't willing to help yourself or speak up for yourself the doctor isn't going to be able to magically ascertain that you aren't getting the relief you should. You always have great insight and are very helpful with your posts. For a little example with what gifts said about research, i had a phone conversation with my doctor last night, he calls to see how i'm doing b/w appts, and i told him that i have been researching the medications that i'm on and what is comparable because he knows i'm a lil scared of them and don't really like narcotics. I also told him that i joined a forum/support group/system so that i have people to discuss things with that way i didn't have to bother him all the time. we are currently switching BT meds, last week he gave me Fentora, and i expressed my concerns with its relief, which was amazing but short due to its half life, and told him some meds i had come across. I asked if we could do a short trial with one of the meds and he seemed happy i had people to talk to and was doing research because i was concerned. He was more than willing to oblige my request for a new BT med and we decided on Dilaudid. if it doesn't work, we'll try something else till we get it right, it is trial and error, and if all else fails i know i can get back on my Oxycodone 15 or 30mg. where the heck have you been, haven't seen you in a while. i always enjoy when you comment on my posts because you tell me what i say is either right, if i'm close or almost have it, or what isn't correct. I love being corrected because then i learn, thanks again for the tips on the vic's and you should post more, i've tried to help as much as i can with my psychology/genetic psych ( a lil psychopharmacology too) but i am always willing and love to learn more. hope to see you around, and check the posts, i know there's some topics that you would be a lot of help in. later. I'm no doctor, i'm just a man with intelligent opinions. -Enigmuh Sorry Enigmuh, I must not
Sorry Enigmuh, I must not have read the max dose/strength thing the right way. Of course, you are right that 10mg is the max strength of hydrocodone. You are also so right in that the doc is not going to be able to magically tell what is going on with you and whether or not you're getting the relief you should be. Alot of people say "the doc should be able to tell" and "I don't want to say anything cause he might think something", but as long as you don't demand it or say it ALL the time, then the only thing the doc will think is that your med isn't working anymore and you are still in pain. Pain can't often be detected by tests like other medical problems can so the only thing docs can go on is what you tell them. Thank you Enigmuh for all your kind comments. I try to help when I can without sounding too opinionated. Most of what I know is either from my experience or from what I have learned on here. I get into spurts of when I have a lot going on at home, and when I spend a lot of time on here. I have just been busy with starting a new job, school, home, and going through multiple med switches to try to find the right thing. Actually, you sound so much like me b/c we both have been going through many switches with our meds, told our docs about doing research and being on here, and the fact that I love for people to correct me as well! I think constructive criticism is a great way to learn, and extremely helpful. Thank you again for everything, it's nice to hear someone say they like what I say, and that I am helping. I'm not always sure sometimes, lol. I know come with a different perspective than most of the other top posters on this site, so I am not always sure if I am appreciated or wanted because of what I say. They are more about just IDing the meds and the technical stuff whereas I am more about actually helping through discussions, offering support, advice, and opinions, and talking about things after you take the meds. I'm going to try to be on here a little more often though, so hopefully you will be seeing more of me. Let me know if you need anything, or any advice, lol! I'm a social worker, not a medical professional. All comments and thoughts are simply my opinion and experience. I thank you all for your
I thank you all for your comments, it really does help. Also, I forgot to mention I have osteophytes, or bone spurs, and sciatica. I have been with my doc for about 7 years, he is also my mother's doctor. My mother had a herniated disc in her neck and was so bad she could not hold her neck up. She had surgery and had a metal plate put in her neck. My doctor also has told me he has never heard of this being hereditary, but he is just in so much shock that all this is going on with me at a young age, he says there is no other explanation. I do believe he knows I am not seeking, but he just does not understand pain very well. He even told me I need to stop what I am doing workwise. I just want him to know that my Hydrocodone is not much working anymore and I do believe I could use something stronger so I will not have to take so much. That is all I want is to function normally, and I don't get the "high" either. But, unfortunately, he is so moody if I catch him in the wrong mood I am afraid he will cut me down because I have known him to do that to some other people, but I do think some of them might have been seeking, so that was probably the case. I cannot get a desk job in my workplace because it does not exist. It is retail, and that's all there is. But, I have decided to start on some resumes and start job searching for an easier job that I could do without so much labor. Unfortunately, I do live in a very small town, so that task will be tough. But I am going to discuss some other options with my doc, I have just been in fear of how he will react, but he needs to know that it is just getting very hard for me. I do believe by the way I am doing and feeling now, in another six months I will not be able to work. I know I am just doing more damage, as he told me I would but I could not help it. My boss actually knows my problems, but she is the type that has no problems, so she does not comprehend. She cuts me not slack, either. That is why I just try to ease the pain and do my job the way she knows I have always done, because if I have a bad day at work it does not matter. Catch the drift? This is why I am miserable!!! I just get so upset over it all that's when I say I just want the surgery and be normal again!!! My doctor has told me before he would not refer me to anyone because they would do nothing since I am so young. That is what I think is so bogus. Although, that was awhile ago, and I have gotten alot worse since then so all I can do is try again, right? Wish me luck!!! Thanks all!! Come on now
I catch him in the wrong mood I am afraid he will cut me down - Ah yes, fear, the mind killer. You cannot be afraid, first, call your insurance company and see if you actually do need a referral to see a pain management doctor, then see if you need to stress about him not giving you a referral. The age thing is bs. I am 24 and got help no problem, age is not a factor, something just seems amiss with this guy and the way you describe his moody behavior, it's like this guy is Bipolar or something haha. You cant be afraid, seriously, that is the worst thing! Especially when you are trying to help yourself! come on now, i don't want to hear that self-defeating thought process that makes you quit before you start. Have you called around to the pain management clinics/ specialists? i found mine through a referral list at the hospital, they give them out for free, So call the hospital and ask a nurse if she can give you the names of the centers for pain relief in your area, they can't say no to someone trying to help themselves, that is completely contradictory to their job and duties. Same goes for your doctor, If he knows you and your mother, than thats all the more reason for him to trust you, i'm sure your mom knows of this and can verify your story, is this guy your family doctor/physician? you need someone who knows about pain, stop worrying about it and stressing about it and just do it, you wont know until you try. :P I'm glad you are searching for a new job, your ailments and current job will land you in unemployment if you're not careful. please, call the hospital tomorrow, speak to a nurse and get the list, they can probably email it to you... also tomorrow call your insurance company and find out if you actually need the referral. talk to you soon, and you better have some progress made by then :) I'm no doctor, i'm just a man with good intentions. -Enigmuh Thank You
Enigmuh-no, it wasn't from the cops that I learned to look people in the eye-I'm an R.N. and have had to do it my whole career. It is so great to be getting everybody's thoughts and insights-I thought I'd voiced my thoughts to my my doc the right way, but maybe things just didn't come out like I thought. I'll try again using all the insight I've gotten from everyone. Since I am going to be getting a round of steroid injections maybe it will help if I say:"Since I'm not getting relief from the vics can I try something else until I get the injections......?" Also, being able to tell him that I'm participating in an "informal support group" will help I'm sure. The problem where I live is that it's very rural and there is only 1 pain management clinic and maybe a handful of pain management docs within a hundred mile radius. They(not the insurance) ALL require a referral. I did see 1 pain doc about 4 years ago, but after several steroid injection failures & my decision to not take the morphine he sent me back to my primary care doc because the only pain med I was on was the vicodin. About a year ago my doc tried to refer me to a different pain doc, but that fell through because she "wasn't taking new patients"! I'm not sure why my doc hasn't referred me anywhere else, unless he's waiting to see if this next set of injections has any benefit. One thing I don't understand is that my doc knows that I'm an R.N. so he knows that I know all about how meds work, lose their effectiveness, etc. Because this is such a small town, I know other people with pain issues & know that he does at times give people "stronger" pain meds. So I just don't get what his hang-up is with me. He has made comments about "how many pills I can give you" because of what the STATE will allow him to prescribe. Here everything is automatic-the state monitors the who, what, when, where & why of all narcotic presriptions. It's a constant audit. Makes it hard for a doc to treat his patients effectively if they're in fear of the "law". I just want to know-who's the doctor? The state or the doctor???? Thanks again for all of your help. You all make it easy for me to be able to express myself-I'm pretty shy about things like this. I'll be checking back soon to read any new postings. 1redhotnascarrn
great way of complimenting,
great way of complimenting, offering suggestions, and supporting, while at the same time trying to push them in a positive way. Sometimes that is exactly what people need- just to be pushed. Good job, I knew you'd make a good addition to this website! I'm a social worker, not a medical professional. All comments and thoughts are simply my opinion and experience. I don't think it is really
I don't think it is really your age that is an issue, but the lack of any neruologic impairment due to degenerative changes in your back is the big issue. You aren't that young for degenerative back changes. 40% of people in their 40's have degenerative changes in their spines on MRI, or something like that. A friend of mine in college, a tennis player, had surgery for heniated disk when she was 22. Even with surgery it is very unlikely you will ever function normally or even be pain free. Even with higher and higher doses of narcotic you will never function normally or be pain free for more than a few days to a few weeks. You doctor seems to understand the nature of chronic pain very well when he advised you to find a physically easier job. Have you tried any interventional pain management techniques? not shure where to put this
I am 5,8 190 LB lots of mussle in preaty good shape to the eye but being a semi pro skateborder for 20 years and a mma figther for about a year I have broken my neck had it fused at 5-6 with hip bone broke all te ribs on my left side and collapsed a lund due ton internal bleeding , have chronic ddd hurneated end plate l1-l2 and chroic arthrites in my whols spine and its slightly crookred from brith, I also have spinal stenosis im 36 I have ben seen by lost of doc's ive moved many times so I have had interacion with 50 plus doc's in utah I was seeing my family pratice doc and a neuro surgon and a sportd medican doc, and a cardiologest , my family doc was giving mr 30 mg moraphine then my nero surgon took over from there when he was done my sports med doc put me on oxys w/ roxey breakthrough 15's even though I was seeing 4 docs at one time only one gave me narcs , I ended up in the er one night and the doc there pulled my dea secudual 3 chart and the doc told me he would do nothing for me im a shoper he said in 6 weeks ive see 6 docs and gotten scripts from all of them with in 6 mo , I told him I had ben refered to them all then they wanted to be the dispensers but he dident care and baned me from LDS hospital IN Salt Lake City I ended up in a methadone clinic for 9 mo cus my insurance was cancled worked for mci world com at the time , and my sports med doc told me word for word that methadone was the easyest to get off with no detox involved well I now know hes a huge lier , long story short I moved to tampa fl and found a dco who will treat people with high doses of oxys,moraphine ,demarol,fetanal and all of the above if you have records that you are really hurt if you have them your in but if your faking it he will boot u out worse than the belt from your pappa but hes cool and knows differend people need different things he treats out of state patients as well how I dont really know, if any one would like info on him please e-mail me and ill give it to you , ive ben his patient for 2 years so I know he opperates I hope this helps thoes who are looking but I have a great doc who is looking for legit pain patients , I can supply web sites ect but dont want to post it on a public board for shoppers to try so if u need help due to chronic pain please e-mail me alex5150 jimfzqAlex5150, it sounds like you
Alex5150, it sounds like you have alot going on. To get opinions or comments on this you would probably be better off starting a new thread of your own. Also, I know you have alot that you are trying to get out and thats why you wrote in internet shorthand, but for most of the members on here, it would be easier to read if you tried to write some things out and watch your spelling. You might even try writing it in word first, then copying and pasting it here. Good luck with everything though! I'm a social worker, not a medical professional. All comments and thoughts are simply my opinion and experience. Please get iformation from the PAIN MANAGEMENT NETWORK
I am telling you. The naivity doctors have now about pain medications come from the DEA. The DEA is supposed to enforce drug laws, not to get involved in patient care. This is similar to asking the police to fix your stove. They dont have the tools nor do they have the skills to deal with the complexities of the trade so therefore, they should not be involved. It is a catch 22. But listen, please get involved in Pain Management networks and support groups because it is amazing how much better and more prepared you will be when confronting those who "question" your pain. It is very sad and I seriously feel very bad for you. Slightly off topic...
~ Now i believe this thread got a little off topic, and we forgot angelbaby in the process, as many of these posts tend to do, Dr. Lois made some great posts, and so did gifts. You are very appreciated, i know i love your insight, and it is also nice to have another person that lends a friendly hand, i really want to know how things went with angel, hope another post comes soon. It is easy for people to vent on this site because your anonymity is intact and you can freely express what you are feeling without any judgement. Some apprehension is always going to be there, like maybe i shouldn't say that, or whatever...don't hold back, just like with the doctors the more honest and open you are the easier it is for us, and the better the responses become. Everyone hang in there and know that there will be a time when we can have a pseudo-normal, or quasi-normal life (not sure which is correct in this case). i will soon be on a stable set of meds myself by returning to what has always worked, oxycodone. I tried to find a better BT med, which isn't always bad, but as Dr. Lois explained, our minds can place false expectations on new meds, and our bodies don't necessarily respond as well as they should, and instead react how we don't want them too. SO much of the relief is psychological that a lot of the times we are our worst enemies, its not because the meds, but because what we feel the meds SHOULD do, not what they ACTUALLY do. They CAN'T make us normal, they can bring us to a level where we can adjust and to where we are able to function as well as we can physically, from there its up to us to carry ourselves across the threshold and take charge of our lives. We cannot depend on our meds to do all the work, we have to pitch in too. Good luck to all and feel free to message me anytime. Good luck all. ~Helix I can't help you until your willing to help yourself... Pain
No one should have surgery out of desperation. Doctors perform surgery because it is their job and the more surgeries they do the more money they make. Sorry to say the new generation of medicine puts the patient last. Suggest a site named: BURTONREPORT.COM. Some much needed truth! |
Joined: 2008-03-12