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Pain Medicine Doctors In Seattle Area / Percocet Withdrawal / Suboxone / Future Pain ManagementGreetings Everyone - I have been in chronic pain for many years. It was originally thought to be low back (L5/S1) pain. I was so desperate for relief, I tried a spinal fusion, which was unsuccessful. The theory now is that I have nerve or some other pain that may be related to my psoas muscle. I have been under the care of several physicians, including my physiatrist, who is currently my prescriber for pain medication, which is Percocet 10/325 (this has ramped up over the months due to increased tolerance) max 6/day, which keeps things at a dull roar. I have been also involved with a Pain Management Group not related to any university, college, etc, which consists of a psychologist (who started the group, and is a very nice man), nurse, general counselor, and physician who evaluates your particular situation, and makes recommendations, but is not a prescribing physician. They have a set protocol - I started with the psychologist, and then had a medication workup with the physician. I also take several other prescriptions, but the ones worth adding here are Klonopin (1mg TID for Panic Disorder) and Wellbutrin-SR (200mg BID for Depression). I had my evaluation on Monday from the Dr. He is recommending that I enter a addiction recovery center at a local hospital for withdrawal from the Percocet, and starting on Suboxone for the general pain management, with another pain medication for break-through (although I don't know what that might be at this point). He also didn't like the fact that I was on both Percocet and Klonopin at the same time, although my primary care physician is aware of both medications (and is the Klonopin prescriber) and has said nothing negative about this. I am terrified. I do not want to be taken off the Klonopin (the last panic attack I had was horrific beyond belief, I told my Dr. I never wanted to have one like that again, and I have been on the Klonopin now for well over 4 years). I also have great misgivings about the Percocet, I know that it is highly addictive, but I do not want to live in pain, and it seems to have been well-managed. He (the pain Dr.) is probably sending a report to my physiatrist and PCP, so the Percocet may be stopped, so I am probably going in on 10/10. I don't know who will possibly be a pain management physician/prescriber for me. I AM NOT A DRUG OR DOCTOR SHOPPER. I am looking for ANY recommendations that you may have. I am also looking for information/advice/hope from anyone in this forum. I am serious. Although a former heavy drinker, I like to think that I have used my other medications responsibly, and I have never hid their use from people. Any information you have would be appreciated beyond all possible measure. Please feel free to publically post or privately respond (particularly if you live in the Seattle/Bellevue area, and have a PCP/Pain Management Physician who you find to be caring and understanding). Thank you for this forum. Musicman...
( categories: Chronic Pain and Pain Management )
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are you diagnosed with polysubstance abuse due to your prescribed meds and you mentioned alcohol.?.probably why they want to detox...i have read reports of people doing well for long periods on the benzos..not needing a larger dose...if your not having problems i myself would not detox...i would think twice about this pyschologist//seems he wants to be your primary dr. I am not a Dr. I just play one on tv. Hello G.- Thank you for
Hello G.- Thank you for replying. As far as polysubstance abuse, I haven't abused any of my medications. As far as alcohol, I have not had a drink in almost 20 years, and have not wanted to. I have not changed the benzos since they were first prescribed. Now, when you mentioned psychologist being primary Dr. did you mean him or the doctor of the clinic who did the evaluation as part of the clinic. The clinic MD will/is not a PCP, does not want to be a PCP, does no medication prescribing. He essentially evaluated all my meds, my situation, and recommended this (and made me wait over 1 hour past my appointment to do so). The psychologist is truely a nice guy, I have been in therapy for a while, and he is only the 2nd of several I have related to (my first retired). Perhaps I didn't understand the post, would you mind explaining a bit more...I am not scheduled until 10/10, but as I mentioned, the clinic doctor is probably sending the report out, and my (real) PCP and the psysiatrist who prescribes the meds will receive it - the psysiatrist has been looking for a reason, I believe, to get out of the prescribing loop, since he has exhausted all his ideas/resources/procedures regarding my pain. I appreciate your information...MM Reply
I don't know...this is why I am asking. I get the feeling that this pain management clinic doctor's philosophy is 1) get people off meds, and 2) that he has a some what cynical view of the drug industry. When I had my initial evaluation with him, it was close to my med time near the end of my appt. and I just mentioned it, and he said, "Oh, it's pill O'Thirty". I have not forgotten that comment, obviously. I also noticed a few anti-pharmaceutical papers around his office. Now I'm really getting confused, and am not trusting things. You are correct, I was "getting along". There are times where this particular strength is not working, and I take a bit more than I usually do, and I would be lying to you, and anyone would, if they did not say they somewhat enjoyed the effect (if people didn't, why do they drink/drug in the first place - it's either because they want to or they have to). I really thank everyone for their posts, the more information, the better, especially since I have an appt. with my psychologist on 10/06...MM Why do Doctors do this/
I don't know why doctors put you on meds, see that they are working and then get scared and try and take you off. Why even bother being in the Pain Mngmt field if you are going to let the DEA constantly get on your back. Most PM docs prescribe without worrying about the DEA. They feel it is there ethical duty to help CP patients and worry about all other things secondary. That is a true pain doc. I was surfing the internet and came across the case of William Hurwitz the VA pain doc who was extremely gullable with regards to prescribing meds but truly cared about his pain patients and it cost him his practice and his freedom.. This was a hugely controversial case and if you get a chance read about it. All chronic pain patients should read about this guy. It's really a sad state of affairs that docs are more worried about the government and laws then managing a legitamate pain patient's pain. Good luck to you, sorry for the rant. which is it?
"Most PM docs prescribe without worrying about the DEA. They feel it is there ethical duty to help CP patients and worry about all other things secondary" "It's really a sad state of affairs that docs are more worried about the government and laws then managing a legitamate pain patient's pain."
?? I am not a Dr. I just play one on tv. I did contradict myself there didn't I?
What I meant to say is that most of the docs I've seen aren't too worried about prescribing for someone who is in obvious pain, however there are a few, and I have read about many on this site, that are very reluctant as a direct result of DEA regulations. They worry more about backlash from the government than the positive outcome with thier pain patients. Sorry for the confusion. This is a tough room sometimes. Good lookin out
I've been around for a couple of weeks now and I have noticed that you have helped me out on a couple of occasions. You helped me figure out how to make urls shorter and given me some advice as well as called me out. Anyway, for that I thank you. This site has been really helpful on so many levels. It also gives me the opportunity to help someone else out where the case may be. Weather is getting cold and painful, looks like I found a winter home. When you live
in NY, South is any where past Maryland, where the weather gets milder. These NY winters are killing me. I notice cold and damp are not my friend. Can't wait to get my Tens Unit. Am I just being silly to think something can make that big of a difference? no wonder doctors are afraid
I looked up Dr. Huwitz after reading your post. It sure sounds like he was put through the wringer. I didn't read all the articles that I found, but it sure makes it easier to understand why doctors are afraid to prescribe pain meds. Doctors are all so different from what I have experienced. My PM doctor is very caring and works with me to keep my pain down, and is working with me to get off the meds so I can get pregnant safely. I have a friend who has a PM doc who does not really seem to care about my friend as a patient, but just sees her as a money maker. He writes scripts to her all the time, but hardly takes time to talk to her and find out how she is really feeling. That is a little scary to me, because I think she is getting more drugs than she really needs. This is the kind of doctor who I think makes it harder for PM patients especially if he has complaints brought against him or criminal charges. On the other hand, there are some people who really need the pain meds, and they are not able to get them. I sure don't have the answers and I am lucky to have a caring doc. I know that not everyone is as lucky. Maybe more doctors really need to get back to their oath, and help to heal the patient, not just see them as a source of income. That's exactly what
I was dealing with until I found a competent doc. I would go in there every three weeks and hand over my copay and whatever my insurance was paying and he would shake my hand ask how I was doing (I got the feeling he did not give a ****) and then hustle me out of there as soon as he could. He would just write the same scripts every time and was not interested in any research I had done. I started to feel really hopeless until I finally changed docs. No offense but doc Hurwitz
No offense but doc Hurwitz deserved the original 25 year sentence he got and he is real lucky he only got 5 on appeal. I know for a fact he prescribed outrageous amounts of oxycontin among other opiates to everyone and anyone and is responsible for about half the people in VA with opiate abuse issues. He wasn't gullable, he was greedy and unethical. He is an extreme case, as I agree the DEA wrongfully punishes legitimate doctors making it hard to get pain management that is worthwhile. Check with a licensed MD before you take any suggestions! I have to agree that
he was prescribing outrageous amounts of pain meds but he had a huge medical following. Not only that ,during the trial evidence showing the prosecution was not 100% accurate in reporting facts came to light. The special witnesses, supposed authorities on the subject, cited incorrect facts and studies all in the effort to convict this dr. The DEA also made some shady moves involving witnesses. There were many reputable Pain docs who came forth to support him during the trial and spoke out on his behalf. It was a very controversial case and you certainly are entitled to your opinion but I have to say after reading almost all the notes regarding the trial I feel he was wrongly convicted. His only crime having been trusting his patients. I believe removing his license to practice and prescribe meds would have been sufficient. I do believe that he was entirely too trusting but I don't believe he was being criminal in the least. He definitely should have had some warning bells sounding in his head with regards to some of his patients but overall I think he had good intentions. Read all there is on the trial and then let me know if you still feel this way. There are many things to consider and it certainly was not cut and dry. Hello MM,I am originally
Hello MM, Thank You
Thank you KK, this is good to hear. I am getting scared, especially since I hear about that you get into real problems when you are on sub and then need additional pain mgmt (surgery) etc. and get opioid medication. I'm glad that I will be able to stay on my benz. medication, as I NEVER want to have another panic attack. I am wondering what would happen if the pain does not go away with the sub, and then I am "hanging" in prescription medication limbo, with the sub not working, and not being able to take my pain medications. I've never been so scared in my life. I have hurt for so long, the thought of it increasing is hard to imagine... Why should you stop what seems to help you?
If I were you I would just go to a different clinic who believes in the miracle of pain meds. There is no question that Opiod analgesics are the most successful course of treament for us chronic pain patients. Don't let doctors or anyone tell you different. Also there is no shame in this course of treatment and if it works for you there is just no need to change anything. If you are dealing with a doc who doesn't believe in this type of treatment find one that does. You should never have to compromise your comfort simply because of one docs philosophy. There are hundreds of Pain Clinics out there staffed with compassionate Pain docs who will treat you with respect and compassion of which you deserve. Find one and never look back. Good luck and let me know how it all turns out for you. First of all you can still
First of all you can still take an opiate breakthrough med while on suboxone and secondly....why would you stop the percocet because someone who isnt even your primary doctor suggested it. If your meds are working fine dont let some other doctor change your mind Pain management MD's
I have found through my extensive hx of back pain, that there seems to be only two groups of pain management clinics/MD's: 1. those who support your use of narcotics for pain management when used properly, and 2. those who are vehemently opposed to any use of narcotics and want to get you off of all meds asap even though you still have severe unresolved pain issues. After a long story of back pain from falls, etc., I went through 2 IDET's, a discectomy at L4-L5, then a fusion at L4-L5 (using my own bone graft from my hip), and this is where they found I actually had a fx facet joint on my vertebrae that never showed up on any scan, be it xray, MRI, CT scan, you name it. So it was actually a good thing I had the fusion, so they could find this problem and fix it, as they said the fx piece of bone was severely compressing several nerves, and almost "digging into" my spinal cord. After I finally healed from that surgery in 2003 (don't EVERhave them harvest your own bone from your hip - that is inhumane in the amount of pain it causes you!!), I was back to a "functioning" level with my back pain - it was never healed totally. On Oct 31, 2005 as I was walking doing trick-or-treating with my kids, I noticed I was having more and more pain with every step. I went to my PCP who did an xray, to find that my spine NEVER fused at the level where I had the fusion! He sent me to a new neurosurgeon who was great, but also said that I had to have a revision of my fusion immediately, as I was walking around with an unstable spine. He did the revision in Dec. 2005, this time using cadaver bone, and the spine fused beautifully, but the pain was worse that ever. I was on Oxycontin and Oxycodone for the pain control post-op, but as time went on and the Dr. wanted me to start weaning, I found I couldn't because the pain was so intense. This is when my quest for a pain management doctor began. My neurosurgeon said he would continue to write the scripts until I could get an appointment somewhere. My point in chronicling all of this for you is to point out 2 things. First, I went from doctor to doctor, not because I was "doctor shopping", but because it took me a long time to find a doctor who would hearwhat I was saying. I had my share of practices that told me I would have to immediately start weaning off of the drugs, and try things such as massage, hot tub therapy, acupuncture, etc. I would tell them that I was all for trying alternative therapies, but at the same time I knew my pain was real, and that massage alone wasn't going to cut it. I also told them it's not like I was wanting to stay on these high levels of meds for the rest of my life (in my late 30's), that I also wanted to proactively continue to look for a reason as to whyI was still having this pain. I finally found a doctor who agreed that the pain I was having was real, and validated that I did need the meds, however he was an hour drive each way! Lucky for me, me sister had a family picnic for both sides of her family, and I got to talking with her father-in-law who also has an extensive back hx. He was raving and raving about his pain management MD, so I asked where he was out of, and it turned out he was only 20 minutes form my house! I called Mon morning, found out he accepted my insurance, AND was taking new patients!! I got in 2 weeks later, and decided I loved him 2 minutes into our meeting! He agreed with my previous pain MD about staying on the meds, and also heard my cry about finding the cause so perhaps I didn't have to stay on these meds forever. After a very thorough exam, he asked if anyone had ever questioned whether I had a problem with my sacro-iliac (SI) joint. Bewildered, I said no. That's when he said he really thought that's where most of my pain was coming from, and that's why I didn't get any relief after the 2nd fusion. After doing some testing, he was right in his diagnosis. Unfortunately, because mine went for so long misdiagnosed, I have some real damage there, so treating it isn't going to be as easy. That's the 2nd thing I wanted to point out to you. First is to ask you - has anyone ver considered that your pain might be coming from your SI joint? If you've already ruled that out for you, then my second point is to keep trying.Just because you go to another doctor in search of the treatment that's right for you, doesn't necessarily mean that you are "doctor shopping". I think you ultimately know what you need for your body - I think we all do _ but sometime get intimidated by these doctors and think that if we insult them, they won't give us what we need. In terms of pain management, unfortunately there are health-care providers in that field that believe that if you need narcotics for managing your pain, then you are automatically "addicted". I know I've dealt with a few of them. Just because we need the pain meds to help us combat our pain doesn't mean we are addicted. I've had this talk with my new doctor (my new best friend!). Sure, physically our bodiesare addicted, meaning that if we stopped taking out Percocets, Oxycontin, Vicodins, whatever, that our bodies would physically go into withdrawal. But if we are taking our pain meds responsibly and our taking them as prescribed, that doesn't necessarily mean we are emotionally addicted. My advice to you is to keep looking for another doctor/APRN until you have found the one who will truly hear what you have to say. There is someone out there for you, and I know how frustrating it is to find the appropriate person who has an appropriate plan. It took me 2 years to find someone for me! Also, don't forget to keep searching for the REASON you still have so much pain. That too took me 3 years to find the reason, and even though we ahven't found the right treatment yet (that would have to be a whole new thread!!) it's taken a lot of weight off just knowing that we finally know what the cause is!! Good luck! You can still take opiates
You can still take opiates while on suboxone. It is not advised because most people are taking it for addiction maintenance. It does take a lot more than you normally would take because the bupenorphine binds more tightly to the receptor than whatver opiate you introduce into your body. When I was abusing opiates back in the day I have personally taken 4 or 8mg of suboxone and still taken opiates a couple hours later and they worked. Pain Management
laidbackjim You yourself can choose which direction to consider. I believe I would keep my long-time PCP, and give thought to the alternatives. I feel comfort with long-term associates. Suboxone may be a consideration here, but if used, no other opiates can be taken during treatment. That would not be fun! If your PCp knows you well, and is comfortable with his treatment, then I would stick with him! Ask him about it. Get his input. Tell him your deepest fears. That's mwhat they're good for! Good luck, and God speed! laidbackjim. Possible Nerve Pain
I suggest Lyrica for your possible?probable nerve pain. It has been a great help to me. I read about it in a magazine "Arthritis Today." IN the article it recommends up to 450mg per day. Drug Reps are pushing it hard so it's not hard to come by, however, it does have its side effects, which include "drunkness type of feeling" and get this "bed wetting" among others like confusion, memory loss, but all these pass with time. That is why it is best to start out slowly and work your way up to a higher dosage. Also, be careful about mixing with large amounts of pain medication as Lyrica is a depressant also. However, when it comes to nerve pain it is well worth a try. On your first visit a neurologists will look at your medical records. Specifically, anything to do with the brain, back, and nerves. If your problem is coming from some type of nerve damage or impingement, they can usually track it down. Many also preform surgery as needed but that depends on the doctor and the problem They like to have MRI's and X-rays to look at. They will try to determine what is causing you condition. They may order additional tests such as nerve conductivity tests. They deal with a wide range of problems from brain tumors to much less serious problems. While my neurologist could not help me he did refer to a pain clinic with the warning "Never allow anyone to operate on your back, it's inoperable. His office staff has done more to help me get the treatment I need than any other type of doctor I've seen so far. I hope everything works out for you. Keep on keeping on!!! Best wishes BRUCE JONES |
Joined: 2007-10-01